Friedreich’s Ataxia, or FA, is a progressive, degenerative neuro-muscular disorder that affects a person’s ability to coordinate muscle movements in their arms, legs, hands and feet, while also impacting speech, vision and hearing.
1 in 50,000 people are diagnosed with Friedreich’s Ataxia.
At this time, there is no treatment or cure, and life expectancy for those with FA is 25 to 35.
Imagine a seemingly healthy child suddenly losing his ability to walk, speak, hear and see, while other children continue to grow and live normal lives. That’s the future for Jake Juip, a tenacious 10-year-old with a strong spirit and the 1 in 50,000 people diagnosed with Friedreich’s Ataxia.
For the Juip family, Jake’s diagnosis was disparaging news, but the 10-year-old boy remains amazingly positive about his future. The video below explains what FA is, how he feels, and what the future holds for him.
The Juip family and FARA scientists remain optimistic that a treatment is within reach.
How Can You Help?
In partnership with the Emagine Theatre in Novi, MI the Juip family, Foley, Baron, Metzger & Juip PLLC (Jake’s father’s law firm) and the Friedreich’s Ataxia Research Foundation (FARA), will host a premiere of Rogue One: A Star Wars Story (2016) at 6 p.m. on Friday, Dec. 16. The public is invited to purchase tickets for the event where all proceeds will benefit FA research and the search for a cure. Admission is $25 a person, with additional sponsorship options available.
Please note this event is sold out and the Juip family is very thankful for all the support. If you would still like to donate you can visit here.